The Royal Dwarf Wedding (S02E03)

In this episode of season 2 of Bizzarro Bazar, produced in collaboration with the Civic Museums of Reggio Emilia: the secret behind the grotesque wedding organized by Tsar Peter the Great; the story of a sperm whale cub that beached in Italy in the 1930s; the black flood that swept a neighborhood in Boston in 1919.

Directed & Animated by Francesco Erba.

“Julia Pastrana” is coming!

I’m excited to announce the imminent release of my new book: Julia Pastrana. The Monkey Woman, for Logos Edizioni.

The book traces the life of Julia Pastrana (Sinaloa, 1834 – Moscow, March 25, 1860), who suffered from hypertrichosis and gingival hypertrophy; as a famous circus performer and “curiosity of nature”, she toured extensively the US and Europe, first with her manager J.W. Beach, and then with her husband Theodore Lent. While on tour in Moscow she gave birth to a child, also suffering from hypertrichosis, who survived for only three days. Julia fell victim to puerperal sepsis and five days later she followed the same fate of her son. After her death, Theodore Lent had both mother and baby embalmed, and continued to exhibit the two mummies in London and across Europe until his own death in 1884. The body of Julia Pastrana was exhibited at various fairs in Norway from 1921 until the 70s, and was eventually forgotten inside a warehouse…

The vicissitudes this woman had to endure, both before and after her death, make her an absolutely unique and relevant figure, so much so that she still inspires artists from all over the world: I think her story is quite exceptional even compared to the already incredible ones of many other freakshow performers, because it contains the germs of many current issues.

To me, Julia Pastrana unwillingly embodied a sort of tragic heroine; and like all the best tragedies, her story is about human cruelty, the clash between nature and culture, the need for love and redemption — but also the ambiguity, the uncertainty of existence. To tell all this, an objective, classic essay would not have been enough. I felt I had to try a different direction, and I decided to let her tell us her story.

Using the first person singular was a rosky choice for two reasons: the first is that there are parts of her existence we know very little about, and above all we ignore what her true feelings were. But this actually allows for a modicum of speculation, and gave me a bit of room for poetic invention even when sticking to historical facts.

The second problem is of an ethical nature, and that is what worried me the most. ulia Pastrana has had to suffer various prejudices which unfortunately are not only a reflection of the era in which she lived: even today, it is hard to imagine a tougher destiny than being born a woman, physically different, and of Mexican nationality. Now, I am none of these three things.
To fully convey the archetypal significance of her life, I tried to approach her with empathy and humility, the only two feelings that allowed me to insert some touches of fantasy without lacking respect.

I really hope that the finished text bears the evidence of this scrupulousness, and that it might entice the reader to an emotional participation in Julia’s troubled life.

Fortunately, the task of doing justice to Julia did not fall on my shoulders alone: Marco Palena, a young and talented illustrator, graced the book with his wonderful works.
Right from our very first discussions, I immediately found he had that same meticulous carefulness — even a bit obsessive at times — that also guided me in reconstructing the historical context where the events took place. The result of this extreme consideration is evident in Marco’s illustrations, which I find particularly sweet and of a rare sensitivity.

Pastrana, who was unfortunate in life as in death, finally found peace in 2013 thanks to the joined efforts of artist Laura Anderson Barbata, governor Mario López Valdez and the Norwegian authorities: her body was transferred from Oslo to Mexico, and buried in Sinaloa de Leyva on February 12 in front of hundreds of people.
Our book is not intended to be yet another biography, but rather a small tribute to an extraordinary woman, and to the indelible mark that her figure left in the collective imagination.
Julia is still alive.

“Julia Pastrana. The Monkey Woman” will be available starting October 21st, but you can pre-order your copy in English at this link.
(I remind you that ordering my books online through the official Bizzarro Bazar bookshop helps support my work.)
Finally, I invite you to follow Marco Palena on his official website, Facebook and Instagram pages.

Rita Fanari: The Last of the Dwarfs

ROLL UP! ROLL UP! The great phenomenon of nature, the smallest woman in the world, 70 cm tall, 57 years old, weighing 5 Kg. RITA FANARI, from UXELLUS. She has been blind since the age of 14 and yet she threads yarn throug a needle, she sews, and all this in the presence of the public. She responds to any query. Every day at all hours you can see this great phenomenon.

So read the 1907 billboard announcing the debut on the scene of Rita Fanari. Unfortunately it was not a prestigious stage, but a sideshow at the Santa Reparata fair in the small town of Usellus (Oristano), at the time a very remote town in Sardinia, a community of just over a thousand souls. Rita shared her billboard – and perhaps even the stage – with a taxidermy of a two-headed lamb: we can suppose that whoever made that poster added it because he doubted that the tiny woman, alone, would be able to fascinate the gaze of passers-by… So right from the start, little Rita’s career was certainly not stellar.

Rita Fanari was born on 26 January 1850, daughter of Appolonia Pilloni and Placito Fanari. She suffered from pituitary dwarfism, and her sight abandoned her during adolescence; she lived with her parents until in 1900, when they probably died and she was adopted, at the age of fifty, by the family of Raimondo Orrù. This educated and wealthy man exhibited her in various fairs and village festivals including that of Santa Croce in Oristano. Since she had never found a husband, Rita used to appear on stage wearing the traditional dress for bagadia manna (elderly unmarried woman), and over time she gained enough notoriety to even enter vernacular expressions: when someone sang with a high-pitched  voice, people used to mock them by saying “mi paris Arrita Fanài cantendi!” (“You sound like Rita Fanari singing!”).

Rita died in 1913. Her life might seem humble, as negligible as her own stature. A blind little woman, who managed to survive thanks to the interest of a landowner who forced her to perform at village fairs: a person not worthy of note, mildly interesting only to those researching local folklore. One of the “last”, those people whose memory is fogotten by history.

Yet, on closer inspection, her story is significant for more than one reason. Not only she was the only documented case of a Sardinian woman suffering from dwarfism who performed at a sideshow; Rita Fanari was also a rather unusual case for Italy in those years. Let’s try to understand why.

Among all congenital malformations, dwarfism has always attracted particular attention over the centuries. People suffering from this growth deficiency, often considered a sign of good luck and fortune (or even divine incarnations, as apparently was the case among the Egyptians), sometimes enjoyed high favors and were in great demand in all European courts. Owning and even “collecting” dwarfs became an obsession for many rulers, from Sigismund II Augustus to Catherine de’ Medici to the Tsar Peter the Great — who in 1710 organized the scandalous “wedding of dwarfs” I mentioned in this article (Italian only).

The public exhibition of Rita Fanari should therefore not surprise us that much, especially if we think of the success that human wonders were having in traveling circuses and amusement parks around the world. A typical American freak show consisted exactly in what Fanari did: the deformed person would sit on the stage, ready to satisfy the curiosity and answer questions from the spectators (“she responds to any query“, emphasized Rita’s poster).

Yet in the early 1900s the situation in Italy was different compared to the rest of the world. Only in Italian circuses, in fact, the figure of the dwarf clown had evolved into that of the “bagonghi”.

The origin of this term is uncertain, and according to some sources it comes from the surname of a Bolognese chestnut street seller who was 70 centimeters high and who in 1890 was hired by the Circus Guillaume. However, this nickname soon became a generic name identifying a unique act in the circus world. The bagonghi was not a simple “midget clown”, but a complete artist:

The bagonghi does not merely display his deformity, he performs – leaping, juggling, jesting; and he needs, therefore, like any other actor or clown, talent, devotion and long practice of his art. But he also must be from the beginning monstrous and afflicted, which is to say, pathetic. Indeed, there is a pop mythology dear to Italian journalists which insists on seeing all bagonghi as victims of their roles.

(L. Fiedler, Freaks: Myths and Images of the Secret Self, 1978)

A few examples: the bagonghi Giuseppe Rambelli, known as Goliath, was an acrobat as well as an equestrian vaulter; Andrea Bernabè, born in Faenza in 1850, performed as an acrobat on the carpet, a magician, a juggler; Giuseppe Bignoli, born in 1892 – certainly the most famous bagonghi in history – was considered one of the best acrobatic riders tout court, so much so that many circuses were fighting for the chance to book him.

Giuseppe Bignoli (1893-1939)

After the war Francesco Medori and Mario Bolzanella, both employed in the Circo Togni, became famous; the first, a skillful stunter, died trying to tame a terrible fire in 1951; the second hit the headlines when he married Lina Traverso, who was also a little person, and above all when the news brok that a jealous circus chimpazee had scratched the bride in the face. A comic and grotesque scene, perfectly fitting with the classical imagery of the bagonghi, who

can be considered as a sort of Harlequin born between the end of the nineteenth century and the beginning of the twentieth century, and that quickly became a typical character, like those of the commedia dell’arte. The bagonghi is therefore a sort of modern masked “type” that first appeared and was developed within the Italian circus world, and then spread worldwide.

(M. Fini, Fenomeni da baraccone. Miti e avventure dei grandi circensi italiani, Italica Edizioni, 2013)

Going back to our Rita Fanari, we can understand why her career as a “great phenomenon of nature” was decidedly unusual and way too old for a time when the audience had already started to favor the show of diversity (a theatrical, choreographic performance) over its simple exhibition.

The fact that her act was more rudimentary than those performed in the rest of Italy can be undoubtedly explained with the rural context she lived in, and with her visual impairment. A handicap that, despite being advertised as a doubtful added value, actually did not allow her to show off any other skill other than to put the thread through the needle’s eye and start sewing. Not exactly a dazzling sight.
Rita was inevitably the last among the many successful dwarfs, little people like her who in those years were having a huge success under the Big Top, and who sometimes got very rich ( “I spent my whole life amassing a fortune”, Bignoli wrote in his last letter). As she was cut off from actual show business, and incapacitated by her disability, her luck was much more modest; so much so that her very existence would certainly have been forgotten, if a few years ago Dr. Raimondo Orru, the descendant and namesake of her benefactor, had not found some details of her life in the family archives.

But those very circumstances that prevented her from keeping up with the times, also made her “the last one” in a more meaningful sense. Perhaps because of the rustic agro-pastoral context, her act was very old-fashioned. In fact, hers may have been the last historical case in Italy of a person with dwarfism exhibited as a pure lusus naturae, an exotic “freak of nature”, a prodigy to parade and display.
In mainland Italy, as we said, things were already changing. Midgets and dwarfs, well before any other “different” or disabled person, had to prove their desire to overcome their condition, making a show of their skills and courage, performing exceptional stunts.
Along with this idea, and with the definitive pathologization of physical anomalies during the twentieth century, the mythological aura surrounding exceptional, uneven bodies will be lost; and a gaze of pity/admiration will become established. Today, the spectacle of disability is only accepted in these two modes — it’s either tragedy, the true motor of charity events and telethons, or the exemplum, the heroic overcoming of the disabled person’s own “limits”, with all the plethora of inspirational, motivational, life-affirming anecdotes that come with it.

It is impossible to know precisely how the villagers considered Rita at the time. Was she the object of ridicule, or wonder?
The only element available to us, that billboard from 1907, definitely shows her as an admirable creature in herself. In this sense Rita was really someone out of the past, because she presented herself in the public eye just for what she was. The last of the dwarfs of times past, who had the capacity to fascinate without having to do acrobatics: she needed nothing more than herself and her extraordinary figure, half old half child, to be at least considered worthy the price of admission.

On the ethics of our approach to disability, check out my article Freaks: Gaze and Disability.
I would like to thank Stefano Pisu, beacuse all the info on Rita Fanari in this article come from a Facebook post he wrote on the page of the Associazione culturale Julia Augusta di Usellus.
Pictures of the original billboard are shown here courtesy of Raimondo Orru; his findings on Rita’s life are included in the book Usellus. Costume popolare e matrimonio (Edizioni Grafica del Parteolla, 2000).

Bizzarro Bazar Web Series: Episode 7

In the seventh episode of Bizzarro Bazar: the tragic and startling story of the Sutherland Sisters; a piece of the Moon which fell to Earth; a creature halfway between the plant kingdom and the animal kingdom. [Be sure to turn on English captions.]

If you like this episode please consider subscribing to the channel, and most of all spread the word. Enjoy!

Written & Hosted by Ivan Cenzi
Directed by Francesco Erba
Produced by Ivan Cenzi, Francesco Erba, Theatrum Mundi & Onda Videoproduzioni

Myrtle The Four-Legged Girl

Mrs. Josephine M. Bicknell died only one week before her sixtieth birthday; she was buried in Cleburne, Texas, at the beginning of May, 1928.

Once the coffin was lowered into the ground,her husband James C. Bicknell stood watching as the grave was filled with a thick layer of cement; he waited for an hour, maybe two, until the cement dried completely. Eventually James and the other relatives could head back home, relieved: nobody would be able to steal Mrs. Bicknell’s body – not the doctors, nor the other collectors who had tried to obtain it.

It is strange to think that a lifeless body could be tempting for so many people.
But the lady who was resting under the cement had been famous across the United States, many years before, under her maiden name: Josephine Myrtle Corbin, the Four-Legged Girl from Texas.

Myrtle was born in 1868 in Lincoln County, Tennessee, with a rare fetal anomaly called dipygus: her body was perfectly formed from her head down to her navel, below which it divided into two pelvises, and four lower limbs.

Her two inner legs, although capable of movement, were rudimentary, and at birth they were found laying flat on the belly. They resembled those of a parasitic twin, but in reality there was no twin: during fetal development, her pervis had split along the median axis (in each pair of legs, one was atrophic).

 Medical reports of the time stated that

between each pair of legs there is a complete, distinct set of genital organs, both external and internal, each supported by a pubic arch. Each set acts independently of the other, except at the menstrual period. There are apparently two sets of bowels, and two ani; both are perfectly independent,– diarrhoea may be present on one side, constipation on the other.

Myrtle joined Barnum Circus at the age of 13. When she appeared on stage, nothing gave away her unusual condition: apart from the particularly large hips and a clubbed right foot, Myrtle was an attractive girl and had an altogether normal figure. But when she lifted her gown, the public was left breathless.

She married James Clinton Bicknell when she was 19 years old, and the following year she went to Dr. Lewis Whaley on the account of a pain in her left side coupled with other worrying symptoms. When the doctor announced that she was pregnant in her left uterus, Myrtle reacted with surprise:

“I think you are mistaken; if it had been on my right side I would come nearer believing it”; and after further questioning he found, from the patient’s observation, that her right genitals were almost invariably used for coitus.

That first pregnancy sadly ended with an abortion, but later on Myrtle, who had retired from show business, gave birth to four children, all perfectly healthy.

Given the enormous success of her show, other circuses tried to replicate the lucky formula – but charming ladies with supernumerary legs were nowhere to be found.
With typical sideshow creativity, the problem was solved by resorting to some ruse.
The two following diagrams show the trick used to simulate a three-legged and a four-legged woman, as reported in the 1902 book The New Magic (source: Weird Historian).

If you search for Myrtle Corbin’s pictures on the net, you can stumble upon some photographs of Ashley Braistle, the most recent example of a woman with four legs.
The pictures below were taken at her wedding, in July 1994, when she married a plumber from Houston named Wayne: their love had begun after Ashley appeared in a newspaper interview, declaring that she was looking for a “easygoing and sensitive guy“.

Unfortunately on May 11, 1996, Ashley’s life ended in tragedy when she made an attempt at skiing and struck a tree.

Did you guess it?
Ashley’s touching story is actually a trick, just like the ones used by circus people at the turn of the century.
This photographic hoax comes from another bizarre “sideshow”, namely the Weekly World News, a supermarket tabloid known for publishing openly fake news with funny and inventive titles (“Mini-mermaid found in tuna sandwich!” “Hillary Clinton adopts a baby alien!”, “Abraham Lincoln was a woman!”, and so on).

The “news” of Ashley’s demise on the July 4, 1996 issue.

 

Another example of a Weekly World News cover story.

To end on a more serious note, here’s the good news: nowadays caudal duplications can, in some instances, be surgically corrected after birth (it happened for example in 1968, in 1973 and in 2014).

And luckily, pouring cement is no longer needed in order to prevent jackals from stealing an extraordinary body like the one of Josephine Myrtle Corbin Bicknell.

Links, curiosities & mixed wonders – 8

Here we are for a new edition of LC&MW, the perfect column to dawdle and amaze yourself at the beach!
(It is also perfect for me to relax a bit while writing the new book for the BB Collection.) (Speaking of which, until Septembre 15 you can get 20% discount if you buy all 4 books in one bundle — just insert the coupon BUNDLE4 at check out. Comes with a free Bizzarro Bazar Shopper.) (Oh, I almost forgot, the above chameleon is a hand, painted by great Guido Daniele, whose job is to… well, paint hands.)
Alright, let’s begin!

  • In Mexico City, at the Templo Mayor, archeologists finally found one of the legendary Aztech “towers of skulls” that once terrorized the Spanish conquistadores. These racks (called tzompantli) were used to exhibit the remains of warriors who valliantly died in battle, or enemies and war prisoners: they were descibed in many codices and travel diearies. The newly-discovered “tower” could well be the famed Huey Tzompantli, the biggest of them all, an impressing rack that could hold up to 60.000 heads, according to calculations (just imagine the nightmarish view).
    On this new site 650 skulls have been found, but the number is bound to increase as the excavation proceeds. But there’s a mystery: the experts expected to find the remains, as we’ve said, of oung warriors. Until now, they have encountered an unexplicable high rate of women and children — something that left everyone a bit confused. Maybe we have yet to fully understand the true function of the tzompantli?
  • One more archeological mystery: in Peru, some 200km away from the more famous Nazca lines, there is this sort of candelabra carved into the mountain rock. The geoglyph is 181 meters high, can be seen from the water, and nobody knows exactly what it is.

  • During the night on August 21, 1986, in a valley in the north-west province of Cameroon, more than 1700 people and 3500 cattle animals suddenly died in their sleep. What happened?
    Nearby lake Nyos, which the locals believed was haunted by spirits, was responsible for the disaster.
    On the bottom of lake Nyos, active volcanic magma naturally forms a layer of water with a very high CO2 concentration. Recent rainfalls had facilitated the so-called “lake overturn” (or limnic eruption): the lower layer had abruptly shifted to the surface, freeing an immense, invisible carbon dioxide cloud, as big as 80 million cubic meters, which in a few minutes suffocated almost all living beings in the valley. [Discovered via Oddly Historical]

If you find yourself nearby, don’t be afraid to breathe. Today siphons bring water from the bottom to the surface of the lake, so as to free the CO2 gradually and constantly.

  • Ok — what the heck is a swimsuit ad (by Italian firm Tezenis) doing on Bizzarro Bazar?
    Look again. That neck, folks.
    Photoshopping going wrong? Maybe, but I like to think that this pretty girl is actually the successor of great Martin Joe Laurello, star of the freakshow with Ringlin Bros, Ripley’s Believe It Or Not, Barnum & Bailey and other travelling shows.
    Here you can see him in action, together with fellow performer Bendyman.

  • The latest issue of Godfrey’s Almanack (an installation by the creator of the wonderful Thinker’s Garden) is devoted to the sea, to ancient navigation, to sea monsters. And it is delightful.
  • Say what you wish about Catherine The Great, but she surely had a certain taste for furniture.
  • Meanwhile in Kenya there’s a lawyer who (for the second time!) is trying to sue Israel and us Italians for killing Jesus Christ. That should teach us a lesson. You can murder, plunder and destroy undisturbed for centuries, but never mess with somebody who has connections at the top.
    P.S. An advise for Greek friends: you may be next, start hiding all traces of hemlock.
  • On this website (click on the first picture) you can take a 360° tour through the crytpt of Saint Casimir, Krakow, among open caskets and exposed mummies.

  • The above pic shows one of the casts of Pompeii victims, and it has recently gone viral after a user speculated ironically that the man might have died in the midst of an act of onanism. You can figure out the rest: users making trivial jokes, others deploring the lack of respect for the dead… Now, now, children.
  • If you’re on vacation in Souht East Asia, and you’re thinking about purchasing a bottle of snake wine… well, think again. The practice is quite cruel to begin with, and secondly, there have been reports of snakes waking up after spending months in alcohol, and sending whoever opened the bottle to the hospital or to the grave.

  • From July 21 to 24 I will be at the University of Winchester for the conference organised by Death & The Maiden, a beautiful blog exploring the relationship between women and death, to which I had the pleasure of contributing once or twice. The event looks awesome: panels aside, there will be seminars and workshops (from shroud embroidery to Victorian hairwork techniques), guided tours to local cemeteries, concerts, art performances and film screenings.
    I am bringing my talk Saints, Mothers & Aphrodites, which I hope I will be able to take on tour throughout Italy in autumn.

That’s all for now, see you next time!

Freaks: Gaze and Disability

Introduction: those damn colored glasses

The image below is probably my favorite illusion (in fact I wrote about it before).

At a first glance it looks like a family in a room, having breakfast.
Yet when the picture is shown to the people living in some rural parts of Africa, they see something different: a family having breakfast in the open, under a tree, while the mother balances a box on her head, maybe to amuse her children. This is not an optical illusion, it’s a cultural one.

The origins of this picture are not certain, but it is not relevant here whether it has actually been used in a psychological study, nor if it shows a prejudice on life in the Third World. The force of this illustration is to underline how culture is an inevitable filter of reality.

It reminds of a scene in Werner Herzog’s documentary film The Flying Doctors of East Africa (1969), in which the doctors find it hard to explain to the population that flies carry infections; showing big pictures of the insects and the descriptions of its dangers does not have much effect because people, who are not used to the conventions of our graphic representations, do not understand they are in scale, and think: “Sure, we will watch out, but around here flies are never THAT big“.

Even if we would not admit it, our vision is socially conditioned. Culture is like a pair of glasses with colored lenses, quite useful in many occasions to decipher the world but deleterious in many others, and it’s hard to get rid of these glasses by mere willpower.

‘Freak pride’ and disability

Let’s address the issue of “freaks”: originally a derogatory term, the word has now gained a peculiar cultural charm and ,as such, I always used it with the purpose of fighting pietism and giving diversity it its just value.
Any time I set out to talk about human marvels, I experienced first-hand how difficult it is to write about these people.

Reflecting on the most correct angle to address the topic means to try and take off culture’s colored glasses, an almost impossible task. I often wondered if I myself have sometimes succumbed to unintended generalizations, if I unwillingly fell into a self-righteous approach.
Sure enough, I have tried to tell these amazing characters’ stories through the filter of wonder: I believed that – equality being a given – the separation between the ordinary and the extra-ordinary could be turned in favor of disability.
I have always liked those “deviants” who decided to take back their exotic bodies, their distance from the Norm, in some sort of freak pride that would turn the concept of handicap inside out.

But is it really the most correct approach to diversity and, in some cases, disability? To what extent is this vision original, or is it just derivative from a long cultural tradition? What if the freak, despite all pride, actually just wanted an ordinary dimension, what if what he was looking for was the comfort of an average life? What is the most ethical narrative?

This doubt, I think, arose from a paragraph by Fredi Saal, born in 1935, a German author who spent the first part of his existence between hospitals and care homes because he was deemed “uneducable”:

No, it is not the disabled person who experiences him- or herself as abnormal — she or he is experienced as abnormal by others, because a whole section of human life is cut off. Thus this very existence acquires a threatening quality. One doesn’t start from the disabled persons themselves, but from one’s own experience. One asks oneself, how would I react, should a disability suddenly strike, and the answer is projected onto the disabled person. Thus one receives a completely distorted image. Because it is not the other fellow that one sees, but oneself.

(F. Saal, Behinderung = Selbstgelebte Normalität, 1992)

As much as the idea of a freak pride is dear to me, it may well be another subconscious projection: I may just like to think that I would react to disability that way… and yet one more time I am not addressing the different person, but rather my own romantic and unrealistic idea of diversity.

We cannot obviously look through the eyes of a disabled person, there is an insuperable barrier, but it is the same that ultimately separates all human beings. The “what would I do in that situation?” Saal talks about, the act of projecting ourselves onto others, that is something we endlessly do and not just with the disabled.

The figure of the freak has always been ambiguous – or, better, what is hard to understand is our own gaze on the freak.
I think it is therefore important to trace the origins of this gaze, to understand how it evolved: we could even discover that this thing we call disability is actually nothing more than another cultural product, an illusion we are “trained” to recognize in much the same way we see the family having breakfast inside a living room rather than out in the open.

In my defense, I will say this: if it is possible for me to imagine a freak pride, it is because the very concept of freak does not come out of the blue, and does not even entail disability. Many people working in freakshows were also disabled, others were not. That was not the point. The real characteristics that brought those people on stage was the sense of wonder they could evoke: some bodies were admired, others caused scandal (as they were seen as unbearably obscene), but the public bought the ticket to be shocked, amazed and shaken in their own certainties.

In ancient times, the monstrum was a divine sign (it shares its etymological root with the Italian verb mostrare, “to show”), which had to be interpreted – and very often feared, as a warning of doom. If the monstruous sign was usually seen as bearer of misfortune, some disabilities were not (for instance blindness and lunacy, which were considered forms of clairvoyance, see V. Amendolagine, Da castigo degli dei a diversamente abili: l’identità sociale del disabile nel corso del tempo, 2014).

During the Middle Ages the problem of deformity becomes much more complex: on one hand physiognomy suggested a correlation between ugliness and a corrupted soul, and literature shows many examples of enemies being libeled through the description of their physical defects; on the other, theologians and philosophers (Saint Augustine above all) considered deformity as just another example of Man’s penal condition on this earth, so much so that in the Resurrection all signs of it would be erased (J.Ziegler in Deformità fisica e identità della persona tra medioevo ed età moderna, 2015); some Christian female saints even went to the extreme of invoking deformity as a penance (see my Ecstatic Bodies: Hagiography and Eroticism).
Being deformed also precluded the access to priesthood (ordo clericalis) on the basis of a famous passage from the  Leviticus, in which offering sacrifice on the altar is forbidden to those who have imperfect bodies (P. Ostinelli, Deformità fisica…, 2015).

The monstrum becoming mirabile, worthy of admiration, is a more modern idea, but that was around well before traveling circuses, before Tod Browning’s “One of us!“, and before hippie counterculture seized it: this concept is opposed to the other great modern invention in regard to disability, which is commiseration.
The whole history of our relationship with disability fluctuates between these two poles: admiration and pity.

The right kind of eyes

In the German exhibition Der (im)perfekte Mensch (“The (im)perfect Human Being”), held in 2001 in the Deutsches Hygiene Museum in Dresden, the social gaze at people with disabilities was divided into six main categories:

– The astonished and medical gaze
– The annihilating gaze
– The pitying gaze
– The admiring gaze
– The instrumentalizing gaze
– The excluding gaze

While this list can certainly be discussed, it has the merit of tracing some possible distinctions.
Among all the kinds of gaze listed here, the most bothering might be the pitying gaze. Because it implies the observer’s superiority, and a definitive judgment on a condition which, to the eyes of the “normal” person, cannot seem but tragic: it expresses a self-righteous, intimate certainty that the other is a poor cripple who is to be pitied. The underlying thought is that there can be no luck, no happiness in being different.

The concept of poor cripple, which (although hidden behind more politically correct words) is at the core of all fund-raising marathons, is still deeply rooted in our culture, and conveys a distorted vision of charity – often more focused on our own “pious deed” than on people with disabilities.

As for the pitying gaze, the most ancient historical example we know of is this 1620 print, kept at the Tiroler Landesmuseum Ferdinandeum in Innsbruck, which shows a disabled carpenter called  Wolffgang Gschaiter lying in his bed. The text explains how this man, after suffering unbearable pain to his left arm and back for three days, found himself completely paralyzed. For fifteen years, the print tells us, he was only able to move his eyes and tongue. The purpose of this paper is to collect donations and charity money, and the readers are invited to pray for him in the nearby church of the Three Saints in Dreiheiligen.

This pamphlet is interesting for several reasons: in the text, disability is explicitly described as a “mirror” of the observer’s own misery, therefore establishing the idea that one must think of himself as he is watching it; a distinction is made between body and soul to reinforce drama (the carpenter’s soul can be saved, his body cannot); the expression “poor cripple” is recorded for the first time.
But most of all this little piece of paper is one of the very first examples of mass communication in which disability is associated with the idea of donations, of fund raising. Basically what we see here is a proto-telethon, focusing on charity and church prayers to cleanse public conscience, and at the same time an instrument in line with the Counter-Reformation ideological propaganda (see V. Schönwiese, The Social Gaze at People with Disabilities, 2007).

During the previous century, another kind of gaze already developed: the clinical-anatomical gaze. This 1538 engraving by Albrecht Dürer shows a woman lying on a table, while an artist meticulously draws the contour of her body. Between the two figures stands a framework, on which some stretched-out strings divide the painter’s vision in small squares so that he can accurately transpose it on a piece of paper equipped with the same grid. Each curve, each detail is broke down and replicated thanks to this device: vision becomes the leading sense, and is organized in an aseptic, geometric, purely formal frame. This was the phase in which a real cartography of the human body was developed, and in this context deformity was studied in much the same manner. This is the “astonished and medical gaze“, which shows no sign of ethical or pitying judgment, but whose ideology is actually one of mapping, dividing, categorizing and ultimately dominating every possible variable of the cosmos.

In the wunderkammer of Ferdinand II, Archduke of Austria (1529-1595), inside Ambras Castle near Innsbruck, there is a truly exceptional portrait. A portion of the painting was originally covered by a red paper curtain: those visiting the collection in the Sixteenth Century might have seen something close to this reconstruction.

Those willing and brave enough could pull the paper aside to admire the whole picture: thus the subject’s limp and deformed body appeared, portrayed in raw detail and with coarse realism.

What Fifteen-Century observers saw in this painting, we cannot know for sure. To understand how views are relative, it suffices to remind that at the time “human marvels” included for instance foreigners from exotic countries, and a sub-category of foreigners were cretins who were said to inhabit certain geographic regions.
In books like Giovan Battista de’ Cavalieri’s Opera ne la quale vi è molti Mostri de tute le parti del mondo antichi et moderni (1585), people with disabilities can be found alongside monstruous apparitions, legless persons are depicted next to mythological Chimeras, etc.

But the red paper curtain in the Ambras portrait is an important signal, because it means that such a body was on one hand considered obscene, capable of upsetting the spectator’s senibility. On the other hand, the bravest or most curious onlookers could face the whole image. This leads us to believe that monstrosity in the Sixteenth Century had at least partially been released from the idea of prodigy, and freed from the previous centuries superstitions.

This painting is therefore a perfect example of “astonished and medical” gaze; from deformity as mirabilia to proper admiration, it’s a short step.

The Middle Path?

The admiring gaze is the one I have often opted for in my articles. My writing and thinking practice coincides with John Waters’ approach, when he claims he feels some kind of admiration for the weird characters in his movies: “All the characters in my movies, I look up to them. I don’t think about them the way people think about reality TV – that we are better and you should laugh at them.

And yet, here we run the risk of falling into the opposite trap, an excessive idealization. It may well be because of my peculiar allergy to the concept of “heroes”, but I am not interested in giving hagiographic versions of the life of human marvels.

All these thoughts which I have shared with you, lead me to believe there is no easy balance. One cannot talk about freaks without running into some kind of mistake, some generalization, without falling victim to the deception of colored glasses.
Every communication between us and those with different/disabled bodies happens in a sort of limbo, where our gaze meets theirs. And in this space, there cannot ever be a really authentic confrontation, because from a physical perspective we are separated by experiences too far apart.
I will never be able to understand other people’s body, and neither will they.

But maybe this distance is exactly what draws us together.

“Everyone stands alone at the heart of the world…”

Let’s consider the only reference we have – our own body – and try to break the habit.
I will borrow the opening words from the introduction I wrote for Nueva Carne by Claudio Romo:

Our bodies are unknowable territories.
We can dismantle them, cut them up into ever smaller parts, study their obsessive geometries, meticulously map every anatomical detail, rummage in their entrails… and their secret will continue to escape us.
We stare at our hands. We explore our teeth with our tongues. We touch our hair.
Is
this what we are?

Here is the ultimate mind exercise, my personal solution to the freaks’ riddle: the only sincere and honest way I can find to relate diversity is to make it universal.

Johnny Eck woke up in this world without the lower limbs; his brother, on the contrary, emerged from the confusion of shapes with two legs.
I too am equipped with feet, including toes I can observe, down there, as they move whenever I want them to. Are those toes still me? I ignore the reach of my own identity, and if there is an exact point where its extension begins.
On closer view, my experience and Johnny’s are different yet equally mysterious.
We are all brothers in the enigma of the flesh.

I would like to ideally sit with him  — with the freak, with the “monster” — out on the porch of memories, before the sunset of our lives.
‘So, what did you think of this strange trip? Of this strange place we wound up in?’, I would ask him.
And I am sure that his smile would be like mine.

Links, curiosities & mixed wonders – 2

Tomorrow I will be at Winchester University to take part in a three-day interdisciplinary conference focusing on Death, art and anatomy. My talk will focus on memento mori in relation to the Capuchin Crypt in Rome — which, together with other Italian religious ossuaries, I explored in my Mors Pretiosa.
Waiting to tell you more about the event, and about the following days I will spend in London, I leave you with some curiosities to savour.

  • SynDaver Labs, which already created a synthetic cadaver for autopsies (I wrote about it in this post), is developing a canine version for veterinary surgery training. This puppy, like his human analogue, can breathe, bleed and even die.

  • Even if it turned out to be fake, this would still be one of the tastiest news in recent times: in Sculcoates, East Yorks, some ghost hunters were visiting a Nineteenth century cemetery when they suddenly heard some strange, eerie moanings. Ghost monks roaming through the graves? A demonic presence haunting this sacred place? None of the above. In the graveyard someone was secretely shooting a porno.
  • Speaking of unusual places to make love, why not inside a whale? It happened in the 1930s at Gotheburg Museum of Natural History, hosting the only completely taxidermied blue whale inside of which a lounge was built, equipped with benches and carpets. After a couple was caught having sex in there, the cetacean was unfortunately closed to the public.

  • In case you’ve missed it, there was also a man who turned a whale’s carcass into a theatre.
  • The borders of medieval manuscripts sometimes feature rabbits engaged in unlikely battles and different cruelties. Why? According to this article, it was basically a satire.

  • If you think warmongering rabbits are bizarre, wait until you see cats with jetpacks on their backs, depicted in some Sixteenth century miniatures. Here is a National Geographic article about them.

  • One last iconographic enigma. What was the meaning of the strange Sixteenth century engravings showing a satyr fathoming a woman’s private parts with a plumb line? An in-depth and quite beautiful study (sorry, Italian only) unveils the mystery.

  • Adventurous lives: Violet Constance Jessop was an ocean liner stewardess who in 1911 survived the Olympia ship incident. Then in 1912 she survived the sinking of the Titanic. And in 1916 the sinking of the Britannic.

  • Here is my piece about Johnny Eck, the Half-Boy, on the new issue of Illustrati dedicated to vices and virtues.

Il corpo del gigante

We have already told many stories about the big family of human wonders, those unique and peculiar people that we call freaks – but in the affectionate meaning, to claim diversity as a value, as something to be proud of.
As happens to many freaks, the life of Edouard Beaupré began in a completely ordinary way and without any presage of an extraordinary future. Born on January 9, 1881, Edouard was the first child baptized in the small community of
Willow Bunch, in the Canadian prairies, that today has less than three hundreds inhabitants.

He was the eldest of the twenty children of Florestine Piché and Gaspard Beaupré, and during the first three years of his life, he didn’t show any distinguishing mark; but things were soon to change. The child began to grow at incredible speed: at the age of nine, he was already 1.83 metre tall. The boy’s body continued to steadily grow in weight and stature, and it was impossible to check his prodigious development.

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All things considered Edouard was still a handsome boy, sweet and kind, a very skilful rider, and dreamt of becoming a cowboy. But luck was definitely not on his side: one day, while he was trying to tame an over-excited horse, the animal planted a violent kick on his face and the hoof broke his nasal septum.

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Now the giant was also disfigured. Pressed by his parents, he therefore decided to enter the show business, relying on his extraordinary body, in order to financially support his family.
Edouard started touring Canada and the United States and his popularity grew until he was even hired by Barnum & Bailey, the biggest and most popular of all circuses.

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Gigantism often involves bone and muscle problems and most giants, in spite of their body size, are very fragile and weak. This was not the case of Edouard Beaupré, whose physique was at the heart of his show: he merged, so to speak, two different traditional sideshow figures in one single performer – he was at the same time a giant and a strongman.

His show consisted of several trials of strength and weightlifting. But it was the final coup de théâtre that invariably left the audience amazed and breathless. Edouard had one of his beloved horses called on the track. He playfully explained that, when he was a boy, he had given up on his dream of becoming a cowboy because, even when he was riding the tallest horse, his legs touched the ground; now he used the animal to keep himself fit… this said, Edouard bent under the horse and, shouldering the beast, lifted it above the ground. Thus lifting more than 4 hundred kilos.

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On the 25th March 1901 Edouard, although exhausted by a disease that the following year would turn out to be tuberculosis, had a wrestling match with Louis Cyr, who is still considered the strongest man of all times – he could lift 227 kilograms with a finger and carry almost two tons on his back. On that occasion Edouard was officially measured: he was 2.37 metres tall. The match lasted a very short time: the giant was defeated in the twinkling of an eye because he did not even dare touch the great champion. According to those who knew him well, maybe Edouard – who was kind by nature – was afraid to hurt his opponent.

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On the 3rd of July 1904, after his usual performance at the Saint Louis World’s Fair, Beaupré collapsed. The steady and inexorable growth, and tuberculosis had prevailed over his physique and caused a pulmonary hemorrhage. When he was carried to the hospital, Edouard was at death’s door and just had the time to mutter how sad it was to die so young and so far from his parents. So the famous Willow Bunch Giant passed away, when he was only 23.
But this was not the end of his story.

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A certain Dr. Gradwohl carried out a post-mortem on his corpse and, as expected, found a pituitary tumour that had probably caused Edouard’s gigantism. Then the corpse was entrusted to the care of a funeral firm, Eberle & Keyes, to be embalmed and prepared for burial. The corpse should have returned to Edouard’s home village, but the circus manager, William Burke, convinced the Beaupré family that costs would be too high and that Edouard would be given a proper burial also where he was. When his parents gave their consent, they didn’t suspect that Burke was not willing to pay a penny. Burke cut and ran after making his parents believe that the funeral had been held and that their son was buried in St. Louis cemetery. He left the corpse at the funeral home and left again with the circus heading to another town.

The managers of the funeral home, enraged because they hadn’t been paid, decided to display the giant’s body in the shop window in order to recover the expenses for the embalming. This did not last for long, because after a few days the police asked to remove it from the public views. So began the odyssey of Edouard’s corpse: at the beginning it was sold to a traveling showman, then was brought back to Montréal by a friend of the Beaupré family, Pascal Bonneau. There it was exhibited for six months at the Eden Museum in Rue St. Laurent, a sort of squalid wax museum; and yet the queue people formed to see the giant was so long that it blocked the street. Around 1907 the corpse became the propriety of the Montréal Circus, another waning reality. Exhibited on a catafalque, the embalmed corpse was an easy prey to dampness, that damaged it, until the circus went bankrupt. Accused of “unauthorised corpse exhibition”, the proprietors left Edouard’s remains in a shed in Bellerive city park. Horrified, some children discovered it, while they were playing in the park.

Huge body of man found by children to Bellerive Park – a lush but poor part of town. The local doctor was called, and I was notified that it was in the presence of a giant human. The condition of the remains is not specified. I bought this amazing discovery with high hopes for the search and examination. The doctor asked me for sneaking that can cost such a treasure. I told him to bring the corpse, a lot.These words were noted down on the journal of Dr. Louis-Napoléon Délorme – who was fond of deformities – that paid 25 dollars for Edouard’s body. Considering the poor conditions of the corpse, he went on to mummify it, and used it for several dissections with his students at the Montréal University. The giant finally found a new accommodation, at the Faculty of Medicine, where it was potted in a display cabinet.

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Edouard Beaupré remained there until the 1970s, when his nephew Ovila Lespérance asked the University to return the remains of the giant of Willow Bunch to his family. In 1989 the academic committee consented to the cremation of Edouard’s remains, that on the 7th of July 1990 were finally inhumed in the small Canadian town. Today a life-size statue reproduces Beaupré’s features and tourists can also compare their own feet to the track left by a shoe of the gentle giant. Who, after 85 years of vicissitudes, rests in peace at last.

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The contents of this article are mostly taken from The Anatomy of Edouard Beaupré, by Sarah Kathryn York.

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